Charlee has been in the hospital since Sunday night. Her vitals have declined in the last couple weeks. She has been having bladder retention and constipation which raised concern to bring us in. We got her cleaned out and now we are starting slowly on her feeds again. The big question is if she can return to her baseline or if this is a progression of her disease and possibly the start of end of life. The next few days will tell us a lot. If it is progression she will have a hard time with her feeds, continue to retain and get puffy and will have more agitation. We'll know then that her body is probably slowly shutting down. Jeff and I have had an emotional week. We've had a lot of hard talks and hard decisions to make. The nurses, techs, doctors, music therapy girls and end of life team here have been most amazing and made this hard time very special and easier for us.
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