Sunday, September 22, 2013

Our Angels:: River House Band


Sponsor Spotlight: River House Band
 
River House Band is a classic and southern rock, country and blues cover band, that presents the best material spanning decades! They perform as a 5-Piece Band as well as an acoustic ensemble.
We were thrilled when they generously donated their time and talents to come and provide music and entertainment at our Charlee's Angels 5K event! Not only are they a group of very kind hearted and generous men, but they are incredibly talented as a group and individually! Read about them! If you are interested in booking them for your event, you can contact them here, or at: http://www.riverhouseband.com/home.cfm

Patrick McEwen: Rhythm, slide, fingerstyle, acoustic, dobro, resonator, and electric guitar; mandolin, harp, lead and backing vocals.
Patrick began playing in summer of 69' in Harrisburg, PA where he saw the The Temptations, Willie Dixon, and Hot Tuna in concert as a steady diet of music. Pat has evolved into an accomplished fingerstyle and slide guitar player that thrives in the roots blues genre, classic and southern rock, country, and gospel performances. Pat has has conducted fingerstyle and blues harp clinics at the "Snowbird Rock and Blues Fest" and currently teaches clinics at the Acoustic Musician in Sandy, UT. He has been playing solo delta and slide blues performances as well as with various bands in Utah over the years (that ultimately landed him in co-founding River House).

Wayne Arballo: Bass guitar, acoustic guitar, lead and backing vocals
A transplant from Southern California, Wayne has been playing the guitar and bass over 35 years. His influences include alternative, blues, country, classic and southern rock, and metal. He appreciates great musicianship in its simplest forms, signature riffs, and memorable vocal melodies. He thrives on groove and flow from the beginning to the end of a set. His greatest influences include most 70's bassists with the work of John Paul Jones, Steve Harris, and Geddy Lee in particular. Wayne instructs and performs guitar tech work out of his home studio. Over the years a variety of musicians and great friends has led him to settle into Utah, swithing to bass guitar, and co-founding River House.
 
Mark Falleroni:  Lead and Rhythm guitar, blues harp, lead and backing vocals.
Mark hails from a small, blue-collar steel town in western Pennsylvania. Encouraged by his father, an accomplished boogie pianist, he began playing guitar at age 11. He was influenced early on by Chuck Berry and the blues icon B.B. King. At age 15 he began playing in bands and the rest is history. He also is a master with the blues harp having added this instrument to his musical repertoire at the age 16. Mark’s addition to River House brings a mix of moving rhythms, versatility on the harmonica, and tasteful solos. His distinct ability for songwriting and musicianship reflects the product of an accomplished professional that distinctly sharpens the edge of a River House performance.
 
Bobby Bird: Drums, percussion. lead and backing vocals.
Inspired by the thriving Bay Area music scene of the 60’s and 70‘s, Bobby toured and recorded with numerous west cost groups sharing the stage with the likes of Tower of Power, Johnny Winter and the Greatful Dead. He's performed at the Cow Palace (Beatle’s fame) with the Hayden Project and was the creative force in DeJa Vu, and The Chessmen. His studies include an A.A. degree from Chabot College; B.A. and M.M. from Brigham Young University where he graduated with honors and was the recipient of the Music Education Award from the School of Music, and Ph.D. at the University of Arizona, Tucson in music education where he studied with John Boyd and received the Research Award for music education. He is an accomplished professional musician with several published articles and loves teaching music students. Bobby is a consument professional and provides River House with a powerful presence on the drums and musical insight."
 We are so grateful to be able to count River House Band as some of Charlee's Angels!
 

Monday, September 16, 2013

Buffalo Wild Wings Spirit Night

 
This Thursday, September 19th, at the Buffalo Wild Wings at the District in South Jordan we will be having a Spirit Day as part of our fundraising for Charlee!! We'd love to have as many join us as possible! Any patrons who dine at the restaurant or bar between the hours of 11am-11pm and present one of the tickets below (You must physically provide the ticket), will automatically have 10% of their bill donated to Charlee (beer and wine sales not included)!! We are so glad they were willing to do this for us, so everyone come on out during the day or evening and "eat wings, and earn money" while helping Charlee!!!

The address is: 
11332 S River Heights Drive (appx. 3800 W just east of Bangerter Hwy off 11400 S)
Please feel free to print off as many of these as you like and hand them out to anyone who would like to come and support us!!!

 

Tuesday, September 10, 2013

Our Angel:: Rusty Sessions with Sidewinder Media

 
 
Rusty Sessions owner and main photographer/DP for Sidewinder Media has been shooting photography for most of his life and professionally for about nine years starting with Wildlife and Nature. Today he shoots pro photography as well as HDSLR video/cinema using some of the top equipment including the well known for both high end photography and Hollywood quality cinema Canon EOS 5D Mark II cameras and Canon L series Lenses as well as many other gadgets and gear that make our video and photography some of the highest quality available today.
5% of ALL purchases from Rusty's website always goes to KeepArtsInSchool.org. The rest goes to support him and his goal of supporting his wife and kids with keeping his family strong and happy
He is a very talented and humble man, and has also been honored as one of Utah's Best In State!
 
Some of his past clients include:
-Utah Jazz basketball team
-SLC Bees baseball
-Harlem Globetrotters
-Danny Glover (Actor/Director)
-Peter Dinklage (Actor/Director)
-311 (Band)
-The Offspring (Band)
-Pepper (Band)
-Anberlin (Band)
-Civil Twilight (Band)
-Crash Kings (Band)
-Ok Go (Band) Photos and Video
-Suicycles (Band) Music Videos
-Business Forward
-Secretary Lisa Jackson (Administrator of the USA EPA)
-Rabbi Benny Zipple (Chabad Lubavitch of Utah)
-Governor Herbert (State of Utah)
-X96 Radio Station
-Daniel Day Trio (Band)
-Trenton McKean (Musician)
-Ebay (Utah department)
 
Rusty was so generous to offer his services at no charge to our Charlee's Angels 5K Benefit, and came the whole day photographing special moments and our racers crossing the finish line! The pictures turned out beautifully! Rusty has welcomed our participants to download their photo at no charge by clicking the file folder icon when they mouse over their photo. Giving you the opportunity to post your pic on Facebook and other social media sites. Rusty has also generously donated 50% of the proceeds from all pictures purchased from our event to go to Charlee's family for our cause!
Rusty is truly a generous and kind heated man, as well as an extremely talented Photographer, and we are so grateful to be able to call him one of Charlee's Angels!
 
To view pictures from the 5k Benefit click here:
To view Rusty's Website and services, click here:
You can also follow him on Facebook, or go to: http://www.facebook.com/SidewinderMedia
 
Thank you so much Rusty for sharing your amazing talent with us!
 
 
 
 
 
 

 
The River House Band


 
Charlee crossing the finish line pushed by Angela with Push to the Finish


Friday, September 6, 2013

Our Angels

We're so excited for Charlee's 5K and Fair coming up tomorrow, September 7th! We have had an overwhelming response and are upto almost 350 runners, which was higher than our original goal! Not too shabby for a first time run! Charlee is so blessed to have so many angels watching out and caring for her, we thank everyone with such full hearts!
With the event now here, we want to take some time to publically and personally thank each one of our amazing sponsors that have chosen to become Charlee's Angels on this journey with us!! We will take some time after the event to give them an individual shout out, but here's a huge hug from us here at the Charlee's Angels Headquarters! ( in alphebetical order)

A-1 Landscaping- Robert Lucero
All Spectrum Painting- Trish Bishop
All Occasions Photo Booths- Diane Busteed (www.alloccasionsphotobooths.com)
Brad's Cars- Brad & Jolene Nelson
BRH Transport, LLC- Boyd & Diane Hamilton
Buffalo Wild Wings at the District (www.buffalowildwings.com)
Bumper to Bumper Reconditioning, LLC- Josie McCloud
Chick-Fil-A Jordan Landing- Robert Dinsdale & Kathleen Whiting
Get Capped- Diane Fehr
Herbs For Health West Jordan-Vince Garcia
Inked Wear-Scott
Insurance Concepts- Brian Church
Little People's Dental- David & Corinne Stewart
MAAP Health Care
padicakes (www.padicakes.blogspot.com)
RanLife, Inc.
Redwood Pediatric Dentistry- Jason J. Horgesheimer, D.D.S.
River House Band- Wayne Arbalb, Pat McEwen (www.riverhouseband.com)
Scepter Group, LLC- Robert Lucero
Sidewinder Media- Rusty Sessions (www.rustysessions.com)
South Valley Compounding Pharmacy- Josh and Bart
Southwest Children's Clinic-Valerie Rahaniotis, M.P.
Stateline Metals-Kay Dunford
Surefire Pizza- Jeffery & Melissa Whitehead (http://www.surefirepizza.com/)

We'd also like to give a shout out to all those generous companies and individuals who donated items to be auctioned off in our Silent Auction, and also a sneak peak to those coming of what to expect to see!
Soccer City- Ultimate Birthday Package
Great Harvest Bread Company Taylorsville- Yummy Gift Basket and Free Bread to all runners
Executive Cleaning Services- Alecia Peacock- 2 4 hour cleaning gift certificates
Sprinkled with TLC- Tami Cromar- Assorted Party Gift Kits
Kevin Godfrey & Dive Utah- 2 Open Water Scuba Certifications, including all books and certification fees
Little People's Dental- David & Corinne Stewart- Dental Gift Basket
Pinecrest Dental- Tyler Williams, DDS.- 2 Sessions of In Office Power Whitening and Complete Dental Exam, X-rays and Cleaning
Twinkle Toes Dancewear- Mindy Oritz- Gift Basket, fun goodies and gift certificate
Jasmine Nails- Jennifer- 2 $25 Nail Service Gift Cards
Dustin Hamilton- $85 worth of Horse Shoeing Services and Super Cute Horse Shoe Frame
Anita's Salon- Anita Brady- $75 Hair Salon Gift Card
Cowabunga Bay- Anna- 5 Splash Passes for 4 hours
Coca-Cola- Jennifer Reese- 1 year supply of Powerade, and Powerade for racers at the finish line
Chick-Fil-A- Jordan Landing- Chick-Fil-A Sandwiches to all runners after race
Red Mango- smoothies to all runners after the race
Image Studios- Brooke Garner $110 in Hair Services
Big O Tires- $25 gift card to Megaplex Theatres, and $25 Gift Card to Best Buy
Morningstar Balloons and All Seasons Resort- Daren & Angie Wilde & Pat Burrus-2 Hour Hot Air Balloon Ride and 1 Nights Stay at All Seasons Resort, Park City
4 Misc. Avon Baskets- Silvia Salas
Flemings- Christopher Cox- $75 Gift Card
Misc. Knitted Items- Sue Rassmussen
Nail Expressions-Sandee Barrows- $45 Worth Nail Services
Momentum Climbing Gym- Chris McFarland- 2 All Day Climbing Passes
Carvers Steakhouse and Hampton Inn- Allie & Adriana Cortes- $100 Gift Card to Carvers & Nights Stay at Hampton Inn
NIMA-Natalie & Jaimie-$35 In Spa Services
Porcupine Grill- Tyne Hennessy-$40 Gift Card
The Dodo Restaraunt- Tyne Hennessy- $40 Gift Card
Hale Center Theatre-Ashley Dean- 10 Show Tickets
Cottonwood Heights Recreation Center-Bart Hopkin- 3 Activity Passes Good for up to 6 People
Chanel Sunglasses- Hidden Valley Eye Care
Red Cliffs Lodge, Moab-Judy Bane- Free Nights Stay
REAL Salt Lake- Cody Despain- 4 Game Vouchers
Shannon Clawson- Free Fitness Training Session
Mary Kay Gift Basket- Kandis Schwartz
Darla Evanson-Catering for 500 Mini Cupcakes
Noodles & Company Ft Union- Ashley Marietti- 4 Tour of the World Experiences for up to 6 people
7 Vintage Collectors Edition Barbie Dolls
Oceanic Digital Underwater MP3 Music System- James Farrell
Famous Dave's BBQ-Paula Behnmiller- All American Feast Certificate up to 4 people
Happenings Book- Kim and Andrea Nelson
Texas Roadhouse- Sammy- 2 Gift Baskets with Free Dinner, Sauce, Glass Boot and Peanuts
Origami Owl Custom Charlee Locket-Lauren Coughlan
Homemade Quilt- Diane Hamilton
 
Last, but not least, a thank you to all our vendors coming to participate tomorrow!

All Occasions Photo Booths
Chick-Fil-A
Discovery Toys
Fun Face Painting
Glitter Tattoos
ItWorks Wraps
Mary Kay
Modern Display
The Neuro Clinic
Padicakes
Pampered Chef
Part of Your World Parties
Shawna Geertsen
Usborn Books
Perfectly Posh/ Pink Zebra
 

Friday, August 9, 2013

Annual Batten Conference

We wanted to give you a brief update from the Annual Batten Conference in Nashville.  We had an amazing time meeting and connecting with families that are living with this horrible disease and taking over our children's lives. 


When we went, we thought Charlee was already so far gone.  With her already losing most of her sight, mobility, communication and now experiencing worsening seizures...we thought our girl was pretty bad off.  The truth is she still has A LOT of life left in her and we all need to take advantage of every moment we can, before it's too late!  While we were there, Charlee started doing things she hasn't done in months.  She said Jericho's name.  She was walking with support.  She was happy, laughing and even trying to dance!  


We all need to capitalize on every single moment we have with her.  We want you to be a part of Charlee's precious life!  I don't want any of us to have regrets of not taking time with her while she can still interact.  She has taught me so much and I am beyond blessed to be her mother.  I know sometimes people don't know what to say, so they don't say anything.  We saw a quote at the conference that I wanted to share "The only thing scarier for families than facing Batten Disease is feeling alone."  I also know some are afraid of getting too close because it will hurt too bad when she gets called home.  Please don't let this keep you away.  We are not asking you to come take her...we are asking you come visit, spend time with her, enjoy her laughter, smiles and sweet spirit.  I know she will touch you and inspire you like she does me every day!

We wanted to share this with you because we love you all so much and we don't want there to be any regrets when she is gone.

All our love,
Catrina & Jeff

Friday, August 2, 2013

An Angel's Voice

Last week, Charlee and her family had the chance to travel to Nashville for the Batten Disease National Conference. Charlee had a great time, made new friends, and did a couple things she hasn't done in months! Like saying her brother's name and dancing!!! You can see these little miracles in the videos below.

More details on the conference will be coming soon.


Monday, July 22, 2013

Take Me Out To The Ballgame!

Today we have a special opportunity for you to win an awesome night out with your family, best friend, date or anyone else while making a difference in the life of precious Charlee and her family.

Up for grabs: 
Suite seat tickets to the Salt Lake Bees game August 16 at 7:05pm. The tickets include parking a free food! An awesome evening with all your bases covered (pun intended) and you can still be doing good in the world? Sign us up!!!

We have up to 10 tickets available and will be offering them to you silent auction style. The bidding will start at  $20 per ticket, so you may just score an amazing deal for watching the game from a suite at Spring Mobile Ballpark.

What you do:
Fill out the form below with your highest bid and the number of tickets you want. This auction will stay open until Thursday August 1 at noon MT. We will notify the winners and send out the tickets by Friday August 2!

Good luck!

 
*AUCTION HAS ENDED*